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KR Wordgazer

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PostSubject: Re: So, yeah. *waves* Hello, again.   Thu May 11, 2017 9:05 pm

Wow, that's rough, Mrs. Grizzley. Can't send much beyond sympathy and hugs.

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Miss Gillespie

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PostSubject: Re: So, yeah. *waves* Hello, again.   Mon May 15, 2017 6:01 am

... Same here, I hope that it's a benign tumor...

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jaRf

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PostSubject: Re: So, yeah. *waves* Hello, again.   Tue May 16, 2017 7:37 am

I hardly know what to write. I wonder if the following will be too rational-minded or something.

The state of this world, all that capitalism, it is just no good. On the other hand, a lot of socialist or communist regimes did not work out, too. I guess human weaknesses are the main point to blame.
It is nasty that there hardly is an extensive health insurance system in the United States. From that p.o.v. I'm happy to be in Europe, here we do have a fairly well working health insurance system. There are a few things that the insurance will not pay, but all the basics are covered.

The classic(!) chemotherapy isn't easy to swallow because the substances used are hardly selective. They are usually cytostatic chemicals that hamper the spreading of cells. Which is good when it hits the cancer, but not good when it hits healthy tissue. And we know of the little prevalence for cancer cells. So it is more a race between the patient and the cancer. Thus people lose hair and feel unwell and all that stuff. There are a few approaches already (and still being researched) to increase selectivity or use completely different materials. But some of them are specific to certain sorts of cancer. I guess mileage varies a lot here.

80 thousand is a huge sum. A sum I have yet to see in my life.
But then, it still is not the end of days. Yes, as Mis Gillespie said, there are also benign tumors, something that could maybe just be cut out and then things are back to fine. Surely no 80k cost. So I guess first step should be a real diagnosis to know how to approach the problem.

On the side of possible problem solutions: Of course I don't have a bright idea how to win a lottery in an instant to be able to pay for all these health services. And I have yet to make money for myself, I don't seem very good at it yet. Wink
But a few things though might still be in reach, without larger amounts of money: Positive thinking (I know this is much easier said than done, especially once you mentioned a depression), a strong will to survive this (same here, but you can use your anger as a driving force to survive) and fight the cancer and a healthy nutrition. Strengthen your own body's abilities to fight the bad tissue. I'm not that deep in cancer research but there are several substances that can be found in grapes, various vegetables and green tea that will support the body to prevent and fight these illnesses.

I wish you and your close one strength, a strong will and good health!
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Elwing

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PostSubject: Re: So, yeah. *waves* Hello, again.   Wed May 17, 2017 12:59 pm

I have to respectfully disagree with you there, jaRf- positive thinking is no cure for cancer. Neither are grapes, various vegetables and green tea.
Distrust and question those who support cancer cures without solid scientific foundations. These are not harmless things- "alternative" medicine peddlars will also deplete the financial means of their patients, while giving them false hope, keeping them away from real, regulated and controlled medicine, and pushing "natural" cures that aren't necessarily harmless.

If it's something small, a home cure may be just the right thing. But if you suspect anything serious like cancer- see a real doctor right away, and avoid quacks like the plague!
As for Mrs Grizzly, my heart bleeds for you. I hope it's not as bad as it seems and you can find a way to get the right medical help. And fuck your cynical, inhuman government. Serious. Why do you put up with this? Universal healthcare is a universal human right!
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PostSubject: Re: So, yeah. *waves* Hello, again.   Wed May 17, 2017 1:34 pm

Elwing, jaRF was simply recommending small things that could help, like healthy food. Not full-blown chakra-realignment kind of alternative therapies.

Trying to stay positive (or driven) and adding foods that have been shown to support the body against cancer can't hurt. Blowing it all on a years' supply of Noni juice because of a "black box reaction" that supposedly makes it a super food wouldn't be good, though.
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PostSubject: Re: So, yeah. *waves* Hello, again.   Wed May 17, 2017 7:16 pm

Yes, I was just recommending the small things. There are things that will help the body in general, some do actually (help to) prevent cancer and other illnesses if taken often enough, and some people managed to get cancer under control or at least "resting".
Cancer generation can happen due to a multitude of reasons, but very often the question is: "Can the body still repair / kill the cell(s) in question?". Sometimes this works out and no harm is done, but some other time it's just a little more than the body can handle.

Of course this is by no means a safe pillow to rest upon and I do have enough background in sciences to know. (That's why I also mention the drawbacks of classic cis-X2PtL2 (with the low selectivity).)
The problem is if you cannot reach the medicine because the public health system in your country hampers you from doing so, then... well, what can you do? At least cling to the little things in reach and keep your mind and body as strong as possible.
Besides, a healthy nutrition does not hurt and it only mildly hurts your purse. Of course one shouldn't fall for any "wonder pills" sold for ridiculous amounts of money.

Besides cancer is still highly researched, the mechanisms of its generation, spreading and cure. So hardly anyone can give definite answers, but there are some promising approaches for certain kinds of cancer; some do offer a good base concept that could probably be fitted to various sorts of other cancers as well. Sadly, a lot of them are (still) expensive.

And I know the prices of a lot of raw materials and believe me, some of them are quite expensive. Now add research / ROI, energy and workforce to produce it and finally testing before it can be released to the public. Additionally pharma industry and everyone inbetween is holding hands up for profit; even the state with taxes.


on superfoods: Some are packing a lot of good things, but some are overhyped. Not bad, but hyped (and so the price increases). Often exotic plants are (re)discovered to have good a composition of chemicals or to contain good things for your wellbeing, but sometimes you'll find a similar composition profile in non-exotic plants as well. Occasionally things become so popular that even cheating comes into play and "organic" food is no longer organic but cut with lower quality material that is contaminated with residues of pesticides, herbicides or fertilizing agents - and the whole thing is jeopardized.
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PostSubject: Re: So, yeah. *waves* Hello, again.   Wed May 17, 2017 7:53 pm

I see where Jarf is coming from and I think it makes sense.

In response to the question "what can we do?"... I think there is something we can do. We can't raise $80,000... But if Mrs Grizz can find an insurance company that will accept her and will cover her treatment-- we might be able to raise enough money to get her through a couple years worth of insurance coverage.

We would need to set up a kickstarter or a gofundme and collectively advertise the heck out of it on Facebook and whatever social media groups we all belong to.

Let's imagine she has to pay, say, $1000 a month-- which would be a huge price to pay for insurance. But two years of even that is only $24000. People have raised that much before. I think we could try. It's not like we lose anything by trying.

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PostSubject: Re: So, yeah. *waves* Hello, again.   Wed May 17, 2017 9:31 pm

That sounds like a good idea I have never gotten involved in online fundraising. How do you proceed?

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PostSubject: Re: So, yeah. *waves* Hello, again.   Thu May 18, 2017 1:06 am

First we have to hear back from Mrs Grizz and get her okay. We will probably need some personal info from her so we can tell a story that elicites empathy from folks. (Like-- we can't just say "our anonymous friend who goes by the alias Mrs Grizzley.") Then, I would Just set up a kickstarter or gofundme for the amount of insurance she needs-- and give everyone a link. We can all contribute to get it started-- then we share it on Facebook and wherever else we have friends online and ask them to contribute. And if everyone gives a little-- we end up with a decent sum.

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Elwing

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PostSubject: Re: So, yeah. *waves* Hello, again.   Thu May 18, 2017 1:54 am

That's a great idea!
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KR Wordgazer

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PostSubject: Re: So, yeah. *waves* Hello, again.   Fri May 19, 2017 12:58 am

Lunakat has a good plan.

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MrsGrizzley

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PostSubject: Re: So, yeah. *waves* Hello, again.   Fri May 19, 2017 3:40 am

I highly doubt that it's benign, for starters. Since I went in for the biopsy that confirmed that it IS cancer the visible lump on the left side of my neck has only gotten larger and more intrusive. And there are other lumps appearing in various places as well.

It's definitely progressing, though, so that's incredibly worrisome.

Here's a link for a writeup on the diagnosis: CLL/SLL

We're hoping to hear back from MD Anderson either today or in the early part of next week about whether or not we've gotten the go-ahead to schedule appointments. We'll see how that works out.

Part of the reason why I'm hesitant to set up the go-ahead on a fundraiser for insurance is because we're trying to not need it and because, if the Indigent Programs aren't able to help for some reason, my next step is to raise the Evac Flag and get me to a state that didn't reject the Medicare Expansion.

I'm probably headed that direction eventually *anyway*, I'm just not in any condition to travel right now. At the moment the plans for evac are sketchy in part because I want to make sure I have a safety net in place for my landing and that's not always easy. I tried to leave a couple years ago and failed. I don't want to fail again if I start that process.
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Lunakat

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PostSubject: Re: So, yeah. *waves* Hello, again.   Fri May 19, 2017 3:44 am

But wouldn't fund raising also help if you needed to use the money to relocate?

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MrsGrizzley

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PostSubject: Re: So, yeah. *waves* Hello, again.   Fri May 19, 2017 3:56 am

If/when I do raise the flag then yes, it would definitely help me relocate, and I have intentions of setting something up to that effect if/when I'm able to physically remove myself from here. I'm... I'm afraid that if I'm not *already* out of this place when I start that part of it again that something will happen, again, and I won't be able to make the leap.

The average, I think, is something like 7 attempts to leave before a person is actually *able* to get out of a bad situation. This would be... something like the 3rd or 4th attempt. Including the time I went to my mom's for a week because I wanted out and was getting a heavy dose of resistance to letting me go. Also including the time I actually started to pack things up because my husband had packed up and *hidden* the laptop from me. Prior to going to work for the day. So that I was *literally* sitting at home with no outside contact whatsoever.

His excuse was that he just wanted some time with me without the laptop there. But even then it felt like it was just that, an excuse. Because otherwise he wouldn't have left me without it while he was *at work*.

So yeah, life's a mess and sometimes things are a hell of a lot more complicated than the kids we once were could have imagined.
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Elwing

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PostSubject: Re: So, yeah. *waves* Hello, again.   Fri May 19, 2017 1:19 pm

gosh girl, I'm so sorry to hear that. It's crazy that you have to move to get the help you deserve, but if that is what it takes, do it.
And don't give up, your life is worth fighting for!
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PostSubject: Re: So, yeah. *waves* Hello, again.   Fri May 19, 2017 10:24 pm

And seriously- you have my contact info-- get in touch

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PostSubject: Re: So, yeah. *waves* Hello, again.   Sat May 20, 2017 12:31 am

Now that is not good to hear that you need to move to get help. Get out here in CA. You could start treatment immediately and apply for the medical aid.

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PostSubject: Re: So, yeah. *waves* Hello, again.   Sat May 20, 2017 11:32 am

I hadn't heard of this. Can I send my husband to another state to get Medicaid?

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PostSubject: Re: So, yeah. *waves* Hello, again.   Mon May 22, 2017 3:05 am

My best guess is that it requires actually *moving* with intent to stay in the new location. I'd have a CYA excuse of leaving my marriage at the same time, so it would all be wrapped up in a huge complicated ball of complication.

Hoping for good news this week and getting to hear that I have an appointment to start treatment, because, really, MD Anderson is the *best* Cancer Center in the world at this point, I think. And I have NO idea if I could even handle traveling any distance in the shape I'm in.
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PostSubject: Re: So, yeah. *waves* Hello, again.   Mon May 22, 2017 3:10 am

Good luck, Grizz. *hug* Good thoughts an well wishes go with you.

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PostSubject: Re: So, yeah. *waves* Hello, again.   Tue May 23, 2017 12:47 am

Good to hear that Grizz. Having the best Dr. to take care of you always helps with your recovery.

Yes. Trollbabe. Some states like California that have expanded Medicaid, allow for treatment to begin while you apply for medical insurance.

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PostSubject: Re: So, yeah. *waves* Hello, again.   Sun Jun 04, 2017 1:29 am

Well, news of a sort. We're looking into a cancer center MUCH closer to home and hoping that they have the resources to treat what I've got. I've got an appointment with them on Tuesday to see where things stand, so at least a doctor is going to be able to look at me and how much I'm struggling just since the end of February.

Maybe, if it turns out that they don't have the resources for what I've got, they'll be able to help get me into some place that *does*.

So yeah, trying to stay hopeful for Tuesday.
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PostSubject: Re: So, yeah. *waves* Hello, again.   Sun Jun 04, 2017 1:34 am

All good wishes an thoughts, Grizz. *hugs*

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PostSubject: Re: So, yeah. *waves* Hello, again.   Mon Jun 05, 2017 4:24 pm

That's great, Mrs. Grizz! Keep us posted. We are all rooting for you!

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PostSubject: Re: So, yeah. *waves* Hello, again.   Wed Jun 07, 2017 4:01 pm

Okay, doc was VERY distressed that I hadn't gone to him much earlier in this whole mess, back when it might have been possible for him to treat it himself. He's a Good Doctor. Problem was, back at that point I was in denial that it was Serious and then I was severely shellshocked by the news that it actually WAS Cancer and... well, kinda going on rote muscle memory and Not Thinking.

I have an appointment in another week with one of his colleagues in another city to see about the preparations to start Chemo. We're likely to have to go aggressive with this to start so I *might* need to have a port put in, don't know yet. As soon as we have some sort of idea of what kinds of costs will be associated with all this we'll look at setting up some sort of donation campaign. That's really what's been holding *that* idea back, we don't know what we would need and it feels like bad form to ask for help when we don't know how MUCH help we're going to need.

So there is progress, and hope. It's still treatable, even as bad as it is right now.

And I'm probably gonna crash again here soon, got home yesterday and just collapsed into bed, or I'd have let y'all know what was up last night.
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